Living with FibromyalgiaThis section is a place to share stories about Living with Fibromyalgia. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download For Cassandra from a mom w/ FMS I am a mom w/ severe FMS [Fibromyalgia]. Have had it at least 10 years. I have two young children. Cassandra your story touched me so much because I really saw my disease from a child’s perspective. I wanted to offer my support to you. You are right - your Dad’s guilt and sorrow over not being the father he wants to be to you is likely his biggest sorrow - far surpassing the physical pain of the disease. YOU have to know that you in no way are the cause of his illness. However in finding ways to love him as he is you can still have a close, loving relationship. On my worst days my kids will lay in bed and watch a movie with me, offer to bring me something to eat or drink, or just hang out with me. The companionship is so important for me emotionally, bringing joy to my heart I can feel inspite of the pain, fatigue, depression However I also need to know they are living “normal” lives. I am happy also to know they do go do things with their dad, play at the park, hang out with friends. Even though I sit in bed alone I feel less guilt knowing that my misery is not ruining their life. On a final note Cassandra I want you to have some hope. Many doctors/researchers are now taking FMS very seriously. More studies are being done now than ever before. Several new meds are being tested. Scientists are close to finding the gene that causes FMS. I believe in the years ahead there will be answers, better meds, and more support for the millions with this disabling condition. If you are able to go online you may even be able to help your Dad by doing some research. Most of all though just do your best to love your Dad, accept his limitations but try not to make him feel he’s different because of them. Know that he loves you with all his heart, and that he most of all wants you to have the best life possible. Share your joys and life experiences with him, knowing you deserve the best life you can have, and you are not responsible for his illness or for helping him feel better. That will ultimately be the best medicine you can give him!!! I hope this helps! Remember this is all coming from a mom who is completely disabled by this condition - so I am speaking from the heart. Thanks for sharing your story - again, your Dad is so blessed to have a daughter like you! Wishing you all the best!
August 2007
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